Tag: multiple sclerosis

Treatment Year 2: A Letter to Myself

Treatment Year 2: A Letter to Myself

Dear me – and the body that’s been through it all with me, I’ve spent a lot of time over the past 11-and-a-half years wishing we could do things differently; that stairs weren’t so steep, that buttons weren’t so tricky to fasten, that common colds […]

MS Awareness Week & 6 Months of Mavenclad

MS Awareness Week & 6 Months of Mavenclad

This week is MS Awareness Week, although lately it feels like every week is MS Awareness Week in our house. I don’t know if he’s overheard some of our conversations about me getting the COVID vaccine, if he’s just become more aware and empathetic every […]

Three Ways to Survive Pandemic Winter with a Chronic Illness

Three Ways to Survive Pandemic Winter with a Chronic Illness

February in New England is about the time we’ve all had enough. It’s cold, it’s gray, the snow is seemingly endless, and this year our long-awaited February break is limited to staycations. We’ve gotten creative with how to keep our kiddos entertained at home and […]

Another Year, Another New Treatment: Mavenclad Year One

Another Year, Another New Treatment: Mavenclad Year One

Well, my first year of my new MS treatment is officially done. This is far from the first time I have changed medications, and I’m sure it won’t be the last. Such is the nature of this disease – new developments and better medication means […]

Some Days We… MS, New Medication, and the Perfect Book to Explain it All

Some Days We… MS, New Medication, and the Perfect Book to Explain it All

As you all know, the past few months has brought MS relapse, change in medication, and lots of learning how to talk about those things to our home. Our discussions about my MS with TJ, and now Jacob, too, have always been open and honest, […]

Mama Doesn’t Feel Good: A Letter to My Boys About MS

Mama Doesn’t Feel Good: A Letter to My Boys About MS

My sweet boys, You are still so little. At just 2-and-a-half and 13 months old, the world should be full of all good things. Summer afternoons in the pool. Ice cream after dinner. Sunday morning French toast. It is my greatest goal to give you […]